#rarediseasejournalingchallenge Day 4

Let's share our obstacles related to living with or caring for someone with a rare disease! I'm intentionally using "obstacles" here instead of the more ubiquitous "challenges" because to say something is a challenge implies that it will be a lifelong struggle; to call something an obstacle is to imply there is a way around it or a way to remove it, if only we can find the path. (Of course, challenges exist, and some really are lifelong. These are not the focus of this prompt.)

By sharing an obstacle with others, we open ourselves to advice and support. Maybe someone out there has a solution. (Bareful to avoid putting something out there that you don't want "unsolicited advice" on! The point of this sharing is to get input.)